双语阅读：不要被悲伤击倒，这是你的力量

分享人生故事，遇见悲伤，创造美好！

Seven years ago, my wife and I had to take our five week old daughter off of life support, by far the hardest and most painful decision of our life. Our daughter, Alle Shea, was born with the rare bone disease called Osteogenesis Imperfecta. At birth Alle Shea’s skull looked like a cracked egg on the x-rays. She also had multiple fractures in her arms and her ribs, her legs, and her wrist. The day Alle was leaving us, we were able to take her outside on the hospital deck and hold her in our arms until she passed away.
 
七年前，我和妻子停止了对五周大女儿的生命治疗。到目前为止，这是我们生活中最艰难、最痛苦的决定。我们的女儿Alle Shea出生就有罕见的骨髓疾病称为成骨不全症。在出生时，Alle Shea的头盖骨在X光片上看起来就像有裂纹的鸡蛋，胳膊、肋骨、腿和手腕多处骨折。当她离开了我们，我们把她从医院用担架带出，把她抱在怀里，直到她离去。
 
Now, we had two choices that day: we could have let the grief over take us, or we could take that grief and turn it into a positive. Since that day, my wife and I have worked tirelessly volunteering our time hosting special events, and talking to students and the media about OI. We even contacted hospitals to try to get them on board with our cause - and this is the battle we are still fighting. Over the seven years, we have volunteered thousands of hours. February of 2015 we started OI Care for You program. We send stuffed animals to children with OI in the hospital for treatment, surgery or home recovering from a break.
 
那一天，我们有两种选择：要么被悲伤击倒，要么变痛苦为动力。从那一天起，我和我的妻子一直不知疲倦地用我们所有的时间举行特别活动，和学生、媒体聊成骨不全症的话题。我们甚至联系了医院，希望他们能加入我们，我们还在努力中。在过去的七年中，我们志愿服务了数千小时。2015年二月，我们启动了OI Care for You这个项目。我们把毛绒玩具送给在医院治疗、做手术或骨折在家休养的患成骨不全症的孩子们。
 
Each one brings a smile and comfort to a child with Osteogenesis Imperfecta (OI).
每个玩具都带给患病孩子微笑和安慰。
We had OI families come from neighboring cities and towns and thank us for doing what we do and giving them another way to show support for a family member with OI.
来自附近城镇的家庭开始感谢我们所做的一切，并感谢我们为他们的家庭提供了一种特殊的支持。
 
致努力行动创造美好的人！